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Baby girl from Stafford nominated for a Newsletter Children of Courage award

By Staffordshire Newsletter  |  Posted: March 27, 2014

By Sarah Marshall

Baby girl from Stafford nominated for a Newsletter Children of Courage award

Baby girl from Stafford nominated for a Newsletter Children of Courage award

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A BABY born with a rare illness and given weeks to live is defying the odds - and has been nominated for a Newsletter award by her family six years after the tragic loss of her brother.

Sophia Faith Colley was born with a genetic condition, called Edwards Syndrome, and given just two to three weeks days after she was born.

Her parents Annette Martinez, 43, and Alex Colley, 36, of Silkmore Lane, were left devastated. It was a double blow for Miss Martinez as her son Daniel Martinez died in 2008 aged five after a well-publicised battle against neuroblastoma, an aggressive form of cancer.

But four months on and Sophia is continuing to do well and her family are so proud of her that older sister Lilly Martinez, 17, nominated her for the Newsletter’s Children of Courage awards.

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Edwards Syndrome is when a baby develops three types of extra chromosome and it disrupts their development. Many do not live long and those who survive beyond one year will have disabilities.

Annette Martinez said: “Sophia was born on November 16 blue and sleepy and rushed straight into special care. A few days later she was diagnosed with Edwards Syndrome.

“I think we had a week after the diagnosis when we were told she was given two to three weeks where we were just so upset. I did think why me? I had already lost Daniel and then I was faced with losing Sophia. But then I thought why not me? You have to pick yourself up and we decided we would make the most of every day with her.

“The doctors won’t give us a prognosis because we just have to take it day by day. Life expectancy is not brilliant.

“But she is doing really well at the moment and gaining weight, and she is spoilt rotten by everyone.

“The nomination for the Child of Courage award was a shock. I had no idea Lilly had done it, but it’s lovely that she has. Sophia is very special to all of us.”

Lilly added: “I am just really proud of her and when I saw the Children of Courage awards I knew I had to nominate her.”

The awards are open to children under the age of 18 in categories, such as outstanding bravery, fund-raiser, special recognition, environment award, carer in helping others.

The deadline is 25th April and you can nominate a child by clicking here.

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