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Eccleshall mum with debilitating brain illness is in hospital as the fund-raising total is reached

By Staffordshire Newsletter  |  Posted: May 20, 2014

Eccleshall mum with debilitating brain illness is in hospital as the fund-raising total is reached

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AN ECCLESHALL mum with a debilitating brain condition has reached her fund-raising target for treatment abroad but sadly her condition has taken a turn for the worst.

Claire Hubbard, 47, who has intracranial hypotension which causes brain or spinal fluid to leak, has now been in hospital for almost two months.

Mum-of-two Claire, a teacher who worked at Stone’s St Michael’s First School for much of her career, went from running marathons to having to use a wheelchair to get around after becoming ill four years ago. It took some time to convince medics there was something wrong until finally she got a diagnosis for the condition, which causes her constant headaches, body jerks and spasms.

She launched a fund-raising campaign earlier this year to pay for treatment in America, which involves scanning the brain to find out exactly where the leak is so it can be treated.

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And an overwhelming number of supporters, including her twin sister Louise Walmsley, husband Paul and daughters Amy, 21, and Kate, 18, came forward to help her achieve her goal.

She has now raised just over £20,000, which includes an anonymous £10,000 donation, but was admitted to the University Hospital of North Staffordshire on March 30 when her condition worsened. She is currently suffering several seizures every day and doctors are still struggling to find the best way to treat her.

She has had scans, which have still failed to find a leak, and on Monday evening began taking a new medication but had a seizure soon afterwards.

Claire has begun writing a blog to share her story and let all her supporters know exactly how she is. She is also looking into whether the money raised could pay for a consultant to come to Britain to treat her rather than her trying to fly to the USA.

Claire is also continuing to update Facebook pand YouCaring pages set up to keep people up to date.

Claire said on her Facebook page: “I can't thank people enough. It gives me hope while I'm stuck in here, that each day I'm in pain, there will be a time when I will be well enough to get some treatment. So many of you are still beavering away in the background - often without me even knowing. I'm blessed to have your support - it truly is appreciated and I can't wait to be able to walk around, meet you all and shake your hand.”

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